November 2018

Table of Contents

  • News from our campaigns
  • Finding the roadmap for living with LHON
  • EBU awarded an accessibility diploma
  • Portugal – ACAPO Congress
  • The fifth EBU Access Cast
  • The AVA – Accessible Voting Awareness-Raising report on The Accessibility of Elections for Blind and Partially Sighted Voters in Europe
  • UNCRPD in Portugal - “Clearing up my rights”
  • EBU Resolution on Tibet

Our campaigns

News from our campaigns

Updates from our different campaigns including the European Accessibility Act, the Audio-visual Media Services Directive, the Web Accessibility Directive, Silent Cars, Automated Driving, Horizon Europe, Digital accessibility and Rail Passengers’ Rights.


Health

Finding the roadmap for living with LHON

Every patient faces their own journey through life, learning about their condition with the best tools available to them. In the case of a rare disease like Leber’s Hereditary Optic Neuropathy (LHON), those tools can be few and far between, making it even harder for patients to plot the best course for them.

A trained journalist currently doing a PhD on the social aspects of LHON and president of Spanish patient group ASANOL, Pedro García Recover talks to pharmaphorum about his own path from diagnosis to living with LHON and working on behalf of his fellow patients.

The full text of this article is also available in French, German, Italian, and Spanish.


Accessibility

EBU awarded an accessibility diploma

EBU was one of more than thirty companies and institutions to be awarded a certificate for their initiatives and projects to improve universal accessibility and care for people with disabilities. The diplomas, awarded by Spanish technology company ILUNION Technology and Accessibility, were presented at a ceremony attended by the Director of Disability Support Policies, Jesús Celada, the Director of Universal Accessibility and Innovation of the ONCE Foundation, Jesús Hernández, and the executive director of the Spanish Committee of Representatives of People with Disability (CERMI), Pilar Villarino.


News from EBU members

Portugal – ACAPO Congress

On April 11, 12 and 13, 2019, ACAPO will hold its II Congress and 1st International Congress on Visual Impairment at the Calouste Gulbenkian Foundation in Lisbon.


Accessibility

The fifth EBU Access Cast

Welcome to the fifth episode of the EBU Access Cast, released on 20th November 2018.


EBU activities

The AVA – Accessible Voting Awareness-Raising report on The Accessibility of Elections for Blind and Partially Sighted Voters in Europe

In 2018 EBU produced the AVA – Accessible Voting Awareness-Raising report on the Accessibility of Elections for Blind and Partially Sighted Voters in Europe.


Our campaigns

UNCRPD in Portugal - “Clearing up my rights”

Since 2008, Portugal has been a party to the United Nations Convention on the Rights of Persons with Disabilities (CRPD).
In 2017, EBU published a publication entitled "The CRPD - A New Look at our Human Rights", with the support and funding of the REC (Rights, Equality and Citizenship ) of the European Union.
The purpose of the publication is to explain how a visually impaired person or someone who interacts regularly with this group of people can benefit from the Convention.


Announcements

EBU Resolution on Tibet

EBU Resolution on the closure of the School for the Blind in Tibet.